News and updates
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The Top Ten+ ME/CFS Research Priorities are published in a peer-reviewed journal
On the 30th September 2022, the Top Ten+ ME/CFS research priorities were published in the peer-reviewed journal “Fatigue: Biomedicine, Health & Behaviour”. Read the peer-reviewed article online After laying out the Top Ten+ ME/CFS research priorities the paper concludes: “People with ME/CFS, their families and carers, and health care professionals worked together to identify, for…
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The Top 10+ research priorities are launched
The Top 10+ priorities for research into ME / CFS have been identified. These priorities have been determined as a result of rigorous work engaging with thousands of people living with Myalgic Encephalomyelitis, their families and carers, and health professionals working to support these people. “Now that we have the Top 10+, researchers, funders and…
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Apply to join the ME/CFS priority setting workshops
Over 2,000 people with ME/CFS, carers and health professionals in the UK engaged with the recent survey from the ME/CFS Priority Setting Partnership. Through three stages of participation, this process is aiming to define the top ten research priorities for people affected by this disease. The process now has just one more step – and you could be part of it. These…
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Last chance to vote for your top ten ME/CFS research priorities
Over 1,700 people have now voted for their top ten ME/CFS research priorities. With the deadline fast approaching this is your last chance to join them and vote. Deadline Monday 13th December 5pm This process gives greater voice to people affected by ME/CFS to decide the direction of ME/CFS research and funding than has ever…
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Join over 1,000 people and vote for your ME/CFS research priorities
Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians are all asked to take part. Vote for your research priorities at www.psp-me.co.uk/take-part The ME/CFS Priority Setting Partnership is particularly looking for more people from ethnic minorities, carers and health care professionals to take part. So far: Just…
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Choose your top ten ME/CFS research priorities – survey launched!
The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted by people with…